Code of Conduct

ISLC-PAIS Conference Code of Conduct

What Unites Us

At the heart of this conference are the millions of people worldwide living with Long COVID, ME/CFS, and related PAIS conditions. Their wellbeing, future, and quality of life must remain more important than individual positions, institutional interests, or scientific competition.

The ISLC-PAIS Conference was created from the belief that meaningful progress requires international collaboration, open dialogue, and the willingness to work across disciplines, countries, and perspectives. Patients and families benefit most when scientific progress is driven by collaboration, openness, and shared purpose.

Patients do not want to see division, they want to see real progress

We encourage all participants to contribute in a spirit of professionalism, mutual respect, scientific curiosity, and shared responsibility. Even where opinions differ, we should never lose sight of the common goal that brings us together: improving the lives of people affected by Long COVID and related PAIS conditions.

From professional ballet dancer to life confined to a darkened room.
Anil van der Zee’s story reflects the profound impact PAIS conditions can have on human lives.  

photo credits: Anil van der Zee
Black and white portrait of Long COVID patient Laure Wiggers lying in bed

Through honest videos, Laure Wiggers helps others with ME/CFS.
By openly sharing her setbacks and coping strategies, she has become a great source of support.

photo credits: Isolde Woudstra

Brenda has dealt with more than 20 years of dismissal and pain.
Her story reflects the urgent need for compassionate listening and earlier intervention.

photo credits: Brenda Blankenstijn

By participating in the conference, you agree to:

  • Engage in professional and respectful communication at all times;
  • Support open scientific discussion while remaining respectful toward differing perspectives;
  • Treat patients, patient experiences, fellow participants, volunteer, crew and colleagues with dignity and respect;
  • Avoid discriminatory, harassing, intimidating, hostile, or disruptive behavior;
  • Respect personal boundaries, privacy, and consent during discussions, interviews, photography, and recordings;
  • Avoid personal attacks, inflammatory language, or conduct that undermines the friendly atmosphere of the conference.

“To the best of our ability, we aim to provide a welcoming, scientifically open, respectful, and inclusive environment for all attendees. We ask all involved to contribute to a friendly, professional, collaborative, and respectful atmosphere throughout the conference.”

Rob Wüst | Chair ISLC-PAIS Conference Foundation

Learn more about our Health & Safety measures

The ISLC-PAIS Conference is committed to providing a safe and science-based environment for all participants. Preparations include enhanced ventilation, continuous indoor air quality monitoring, and the availability of high-quality masks and hand disinfectant stations throughout the venue.

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