Patient recap Livestream Session Program
Patient Recap Program
The Patient Recap Session brings the most important scientific and clinical developments from four days of the ISLC-PAIS Conference into one focused, accessible live conversation for patients, partners, families and the wider PAIS community. The session is broadcast live from the Auditorium in Amsterdam. It is not open to the general public at the venue and no tickets will be sold at the door; only a small invited audience will be present.
Throughout the session, viewers can join several Q&As and take part in live polls. There will undoubtedly be more questions than can be answered, so participants can upvote the questions they consider most important and help the moderators set the priorities for the conversation.
Auditorium
15:00–17:30
Host: Emily Kate Stephens
Sat 29 Aug
15:00
5 min
Opening of the ISLC-PAIS Conference Patient Recap Session
Journalist and Long COVID patient Emily Kate Stephens opens the Patient Recap with the ISLC-PAIS Conference Chair Rob Wüst. Together they reflect on four days of conference conversations and the moments that stood out and what this Conference means for patients.
Emily Kate Stephens | Journalist, Podcast Host & Long COVID Patient
Rob Wüst | ISLC-PAIS Conference Chair
Sat 29 Aug
15:05
5 min
Wednesday (PM) Review
A patient and an Early-Career researcher were sent into Wednesday afternoon’s opening sessions to experience the conference from two different perspectives. In this short video recap, they compare notes and share the program highlights.
Sat 29 Aug
15:10
12 min
Breakthroughs
What is genuinely new, promising or emerging from the conference? Explore the findings and developments that could change our understanding of Long COVID, ME/CFS and PAIS.
Resia Pretorius | Vice-Dean: Research and Postgraduate Studies | Stellenbosch University
David Putrino | Director of Rehabilitation Innovation | Icahn School of Medicine at Mount Sinai
Rob Wüst | Assistant Professor, Human Movement Sciences | VU University Amsterdam
Sat 29 Aug
15:22
5 min
Poll + Q&A
Put your questions to the panel and vote for the questions you most want answered. We expect more questions than the available time allows, so the most upvoted questions will be prioritised.
Sat 29 Aug
15:27
5 min
Thursday (AM) Review
A patient and an Early-Career researcher return with a fast-paced recap of Thursday morning. Together they identify the presentations, emerging ideas and practical messages they believe patients should know about.
Sat 29 Aug
15:32
12 min
Changing Patients’ Lives Today
What have we learned that can already make a practical difference? Hear how current knowledge is influencing care, rehabilitation and symptom management today.
Alba Azola | Assistant Professor | Johns Hopkins University School of Medicine
Michelle Bull | Frailty Academy Programme Manager & Co-founder | Royal Surrey NHS Foundation Trust
Mark Faghy | Professor of Clinical Exercise Physiology | Loughborough University
Sat 29 Aug
15:44
5 min
Poll + Q&A
Put your questions to the panel and vote for the questions you most want answered. We expect more questions than the available time allows, so the most upvoted questions will be prioritised.
Sat 29 Aug
15:49
5 min
Thursday (PM) Review
What changed during Thursday afternoon? Our patient and Early-Career researcher compare their notes from the parallel sessions and select the findings, debates and unanswered questions that deserve a place in the Patient Recap.
Sat 29 Aug
15:54
12 min
From Lab to Clinic to Scale
How do promising discoveries become tests, treatments or strategies that patients can actually access? A short talk on the journey from research and clinical validation to implementation at scale.
Jeroen den Dunnen | Associate Professor & Head Infection and Molecular Medicine | Amsterdam UMC
Michael Peluso | Assistant Professor of Medicine | University of California
Michele van Vugt | Professor of Infectious Diseases | Amsterdam UMC
Sat 29 Aug
16:06
5 min
Poll + Q&A
Put your questions to the panel and vote for the questions you most want answered. We expect more questions than the available time allows, so the most upvoted questions will be prioritised.
Sat 29 Aug
16:11
5 min
Special Moment
A brief moment of recognition and reflection, shared live from Amsterdam. The details will remain a surprise until the session.
Sat 29 Aug
16:16
5 min
Friday (AM) Review
The Friday morning program brings another wave of science, clinical insight and discussion. A patient and an Early-Career researcher distil the sessions into a concise recap and highlight what felt most relevant for the PAIS community.
Sat 29 Aug
16:21
12 min
Filling the Gaps
What are patients still missing or needing? Identify the unanswered questions, unmet clinical needs and areas where research and care still need to move forward.
David Joffe | Senior Staff Physician | Royal North Shore Hospital
Michelle Bull | Frailty Academy Programme Manager & Co-founder | Royal Surrey NHS Foundation Trust
Alba Azola | Assistant Professor | Johns Hopkins University School of Medicine
Sat 29 Aug
16:33
5 min
Poll + Q&A
Put your questions to the panel and vote for the questions you most want answered. We expect more questions than the available time allows, so the most upvoted questions will be prioritised.
Sat 29 Aug
16:38
12 min
Friday (PM) Review
As the scientific program moves towards its final day, our two conference correspondents look back at Friday afternoon. They select the developments, questions and conversations that should be carried forward into the Patient Recap.
Sat 29 Aug
16:50
12 min
Cross-Conditions
What can Long COVID, ME/CFS and other PAIS learn from one another? A discussion where shared mechanisms and approaches can help, and where differences must remain visible.
Caroline Dalton | Associate Professor of Neuroscience and Genetics | Sheffield Hallam University
Rae Duncan | Consultant Cardiologist, Cardiothoracic Department | Newcastle Hospitals NHS
Odilia Corneth | Principal Investigator, Department of Pulmonology | Erasmus MC Rotterdam
Sat 29 Aug
17:02
5 min
Poll + Q&A
Put your questions to the panel and vote for the questions you most want answered. We expect more questions than the available time allows, so the most upvoted questions will be prioritised.
Sat 29 Aug
17:07
5 min
Saturday (AM) Review
The final conference morning is reviewed through the eyes of a patient and an Early-Career researcher. They bring together the last scientific highlights and identify the ideas that connect directly with the closing Patient Recap conversation.
Sat 29 Aug
17:12
12 min
What Happens Next
Of everything we have learned, what should be prioritised now? Hear what researchers and clinicians believe needs to happen next to move towards treatments and better care for patients.
David Putrino | Director of Rehabilitation Innovation | Icahn School of Medicine at Mount Sinai
Michael Peluso | Assistant Professor of Medicine | University of California
Michele van Vugt | Professor of Infectious Diseases | Amsterdam UMC
Sat 29 Aug
17:24
6 min
Closing
Emily Kate Stephens and Rob Wüst bring the Patient Recap to a close, reflect on the questions raised by viewers and look ahead to what patients, researchers, clinicians and organisations can do next.
Program timings and contributors may be subject to minor changes.